This year, 22-year-old Demi Lawson has not only faced a global pandemic, but a diagnosis of brain cancer, an awake craniotomy (brain surgery) – and has been learning to live with the death of her younger brother.
The Alfred has launched a world-first clinical trial to investigate whether an existing medication can be used to treat people with Rett syndrome – a rare and catastrophic neurodevelopmental disease that currently has no cure.